Guest Post by Jenni Miller
I first heard of PKD in early 2003 when I met my father-in-law, Peter. He was on a dialysis machine set up in the study of their family home. My husband Damian skimmed over the details of PKD with me that evening, explaining that neither he nor his brother David could donate a kidney to their Dad as they both also had the disease.
Peter passed away later that year – at only 50 years old. It was a huge wake up call and the catalyst for Damien to start thinking more seriously about his future. We married in 2005 and had our first child Ajay later that year.
Damian’s nephrologist appointments were generally uneventful as his kidney function and blood pressure were within a “healthy range” and his specialist said he wouldn’t have to worry about dialysis until later in life. Then in late 2006 Damian took a knee to one of his kidneys in a basketball match and that evening saw blood in his urine. He spent a week in hospital and it was then that we found out his kidney function had declined quite dramatically.