• At least one in every 1000 people has ADPKD
• Because ADPKD has a ‘dominant’ inheritance pattern, there is a 50% chance that an affected parent will pass on ADPKD to each child born.
• Kidneys can enlarge 3-4 times their normal size.
• Nearly 2/3 adults and 1/3 children with ADPKD will develop high blood pressure or hypertension.
• Around 1 in 12 people with ADPKD will develop small brain aneurysms (these tend to occur in those with a family history of strokes).
• No specific dietary or other lifestyle measures have been shown to prevent cysts from developing in those with ADPKD, however a healthy lifestyle will help protect your kidney function, keep your blood pressure healthy and reduce your risk of heart attacks and strokes.
• Those with ADPKD should aim to keep their daily salt intake to no more than 5/6g (1 teaspoon) and preferably less. Often foods with “low salt” on the label mean that it has been replaced by Potassium, which can be equally as harmful.
• If you have ADPKD there is a 50% chance your baby will also inherit the ADPKD gene and develop ADPKD sometime during their life.
• Around 10% of people with ADPKD also have cysts in their pancreas.
• Approximately 50% of people with ADPKD develop kidney failure before the age of 60.
Someone reports a family history of ADPKD
Signs and symptoms that commonly occur in ADPKD appear
A test is done for another reason such as UTIs or kidney stones and cysts are found in the kidneys