• In the general public, 1 in 70 is a carrier.
• It is estimated that between 65 and 76% of children with ARPKD also have high blood pressure.
• About 1 in 3 babies with ARPKD die from breathing problems within the first four weeks of life.
• 80-90% of babies that survive the first four weeks of life are still alive at the age of 5.
• There is very little scientific investigation into how many children survive into adulthood.
Click here to Donate via bank transfer. Here you can also see how you can help Fundraise with us
Donate Now!