By Talia Gutman
I am researcher at the Centre for Kidney Research in Westmead, and my work focuses on improving the ways in which we involve patients as partners in our research.
It has become clear in recent years that the priorities of researchers and clinicians are not always consistent with the priorities of patients and their families. It is also now widely recognised that patients and caregivers have vast expertise, knowledge and skills, and that harnessing these appropriately can lead to better clinical outcomes. Tapping into the collective wisdom of patients and their families, and realigning research efforts to more closely align with their perspectives, will also ultimately ensure that research is useful for treatment decision-making.