Watch it here

There are a number of great educational resources available from worldwide experts in the area of PKD.

You can access a range of great webinars from the US at www.pkdcure.org/learn/multimedia/webinars and including topics such as research updates, healthy living, emotional issues and how to talk to children about PKD.

Webinar Wednesdays occur on the third Wednesday of each month with PKD Foundation Chief Scientific Officer David Baron. You can watch them at http://www.pkdcure.org/learn/multimedia/webinar-wednesdays

You can also read other peoples experiences of PKD and their stories at http://www.pkdcure.org/voicesofpkd/stories

Genetics Information Evening with PKD Australia

Watch the recording to learn about genomic testing for PKD, related research from the Garvan Institute of Medical Research and how this research is being translated to the clinic through the Australian Genomics Renal Flagship, KidGen.

PKD Australia Patient Video

Sydney Seminar Part 1

Healthy potassium levels

One of the kidneys’ functions is to keep the right amount of potassium in your body. If there is too much, healthy kidneys will filter out the extra potassium, and remove it from your body through urine. However, when kidneys do not work well, they may not be able to remove enough potassium. This means that potassium can build up in your blood to harmful levels.

For people with PKD, it’s important to be aware of potassium in their diets.
Click here to read more.

PKD Seminar – Macquarie University

Listen to our first public seminar held in Sydney to hear all about PKD from Professor Jeremy Chapman and the latest research with Professor Jacqueline Phillips.

Renal Society Australasia Webinar

Resources

KHA-CARI Guidelines

The ‘Kidney Health Australia – Caring for Australasians with Renal Impairment (KHA-CARI) Guidelines’ are an evidence-based project that began in 1999.

The Kidney Health Australia – Caring for Australasians with Renal Impairment (KHA-CARI) Guidelines seeks to improve the quality of care and outcomes for patients with kidney disease in Australia and New Zealand by facilitating the development and implementation of clinical practice guidelines based on the best available evidence and effectiveness. The Guidelines cover three disease areas; Kidney Disease, Dialysis, and Transplantation. 

This project is funded by the Kidney Health Australia and is managed by the CARI Guidelines Steering Committee. 

See more about KHA-CARI Guidelines for health professionals on KHA-CARI website.

A KHA-CARI Patient and Caregiver Guideline for the Diagnosis and Management of Autosomal Dominant Polycystic Kidney Disease can be downloaded here.

Helpful Links

kidney.org.au
 

morethanpkd.com
 

heartfoundation.org.au
 

pkdcure.org
 

pkdcharity.org.uk