As your child grows, the initial abdominal enlargement will decrease. It is unusual to have any signs or symptoms related to the kidneys unless the kidney function is severely reduced. The kidneys are not painful but there is an increased possibility of developing urinary tract infection (UTI). The liver may develop scarring causing pressure on the blood vessels of the stomach and spleen. This may result in enlargement of the spleen and rarely the tendency for bleeding into the stomach.
The most important aspect to slowing the rate of kidney deterioration is excellent control of blood pressure. Children have lower blood pressure ranges than adults with a goal blood pressure less than 110/75.