I found out at age 27, purely by being tested for something else, that I had PKD. I later found out that my brother also has it. We assume our mother had it as her death certificate was kidney failure. I lived a relatively normal life until around 2015 when my kidneys started to fail and I started haemodialysis. I did home haemo which gave me much more freedom than having to go to the hospital to do it. I got “the call” at quarter past twelve on Friday morning of 23 March 2017 that a kidney had been found for me.