By Graham Bradley
I discovered that I had PKD back in 1989 after a four-wheel driving adventure on Fraser Island. The rough terrain managed to give me the warning sign. After a visit to my GP on returning home and a scan, he announced that I had PKD and referred me to the Renal Centre at my large, local hospital. After more checks and visits I was advised that it was likely that I would be on dialysis within 5 years (that would be at age 50). I was referred to the hospital dietitian and received lots of other literature. I was a bit shocked by all this at the time in my life. Could not find any family PKD connections. Anyhow from then on, I visited my hospital kidney specialist regularly, followed all the dietary advice, took up regular personal regular monitoring of my BP and decided that I was going to get on with life to the full but within my constraints. I needed to reduce weight, salt and sugar, exercise more…that was the hard one, eat all the right foods that relate to potassium and phosphorus intake, etc etc.
My wife and I loved to travel, not only in Australia but also overseas. Realising that fairly soon we may be restricted by my PKD we hit the road so to speak, caravanning, camping and a number of overseas trips, all under the guidance of my renal specialist.