Guest Post- Janice Creenaune
My name is Janice Creenaune and I have PKD. My mother has PKD. Her sisters had PKD and my daughter has PKD. In my family, through the generations, it was always known as the ‘Women’s disease’. Most, living in the country areas, had limited care. Records are limited. However, I knew of nobody outside of my immediate family who suffered from the disease.
All of you suffering from PKD have a story associated with your illness and many of you have far more complicated conditions. Yet we have much to learn from each other.