I’m 41 yrs old and I have ADPKD
By Jenny I’m 41 yrs old and I have ADPKD. I was diagnosed at 15 after my father died suddenly aged 52 from an aneurysm
January 30, 2020
By Jenny I’m 41 yrs old and I have ADPKD. I was diagnosed at 15 after my father died suddenly aged 52 from an aneurysm
By Allison I was diagnosed with ADPCKD at the young age of 13. Fast forward 18yrs and my life was turned upside down! I had
Awareness of Polycystic Kidney Disease is about to receive a major boost from a team of dedicated rally car drivers and a family determined to
By Carolyn I found out at age 27, purely by being tested for something else, that I had PKD. I later found out that my
By Rachel My mum died when I was seven. She had Autusomal Dominant Polcystic Kidney Disease. I remember her being so unwell on haemodailysis at
“we wanted to share a story from one of our community members that addresses the issue of pain and demonstrates the complexities of the disease.
Click here to read all 10 stories from the Rare Humans Magazine. By registering for our newsletter you will automatically receive the Rare Humans Magazine.
By Helen A dozen years ago, Judi and I were two mums who shared a school run for our boys. Our biggest worry then, was
By Graham Bradley I discovered that I had PKD back in 1989 after a four-wheel driving adventure on Fraser Island. The rough terrain managed to
By Charmaine When my son was born, there were already tiny cysts growing in his newborn kidneys. I knew there would be a 50 percent
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