I was born with infantile polycystic kidney disease (ARPKD). It was misdiagnosed a number of times before my parents Kim & Dennis took me into Westmead Children’s Hospital. This is when we met Dr Elizibeth Hodgson and Dr Michael Stormon who gave the correct diagnosis which was infantile polycystic kidney disease.
I spent years in and out of Westmead Children’s Hospital and had some horrific times. I would vomit blood to the point I would end up in intensive care fighting for life. I had infection after infection including septicaemia with no known reason as to why these kept occurring. I had a number of surgeries just to try and keep me alive, ultimately, I needed a kidney transplant.