Guest Post – Alicia
When I was diagnosed with PKD almost 3 years ago at age 22, I took it as a death sentence. But with three ultrasounds, a chest x-ray, a CT scan, MRI, several blood tests and other jabs against hepatitis A & B, 5 visits to a wonderful specialist and many more to to an equally wonderful GP under my belt, the verdict is clear and the sentence set. I got life.
After the initial shock and I’ll admit, disgust at the discovery of the disease PKD, in a strange twist, being a person with PKD has taught me a lot.
Firstly, I learnt a lot about myself. At first it was difficult to come to terms with because I didn’t look sick, I still don’t. Nor can I see the state of my kidneys without the help of xrays and dye or sound at a higher frequency that 20khz. And reading about it made me feel more isolated – the more I read about my illness, the less I felt I knew myself. However upon reflection, being diagnosed with a disease actually made so much sense.