(current as of November 2024)
PKD Australia Limited ABN: 14 601 020 179 (“PKDA” – the Charity) is a not-for-profit organisation whose main aim is to raise money to find a cure for Polycystic Kidney Disease (“PKD”). To help us achieve this, we need to collect personal information. We are committed to protecting your privacy and this Privacy Policy (“Policy”) outlines how we collect, manage, use and safeguard your personal information in accordance with the Privacy Act 1988 (Cth).
“Personal information” means any information or opinion, whether true or not, and whether recorded in a material form or not, about an identified individual or an
individual who is reasonably identifiable. In general terms, this includes information or an opinion that personally identifies you either directly (e.g. your name) or indirectly.
PKD Australia collects personal information about donors and other individuals who are connected to PKD Australia to enable us to provide certain services to you. This may vary depending on how you interact with us and may include your name, address, telephone numbers, date of birth, email address, bank and credit card details.
Occasionally, we collect ‘sensitive information’ such as whether you or someone you are related to has PKD, your racial origins, religious or philosophical opinions. We will only collect this where you have consented to us having this information.
We collect most information directly from you usually via phone calls with us, emails, in writing or face-to-face; or when you use our website. This may include when you make a donation, register to help, signup for a newsletter, or participate in marketing or fundraising campaigns.
We may also collect your personal information from third parties or through publicly available sources, for example from Zoom, Raisely, Mailchimp and Grassrootz. We collect your personal information from these third parties so that we can host webinars and meetings, facilitate donations and fundraising, and communicate through emails, newsletters and social media.
The main purpose for collecting your personal information is to help us provide our services. We may use and disclose your personal information for this and other purposes, including conducting our business. This may include facilitating donations and charitable support to PKD research; marketing, improving, supporting and enhancing our programs; communicating with you; and meeting our legal obligations.
We may disclose your personal information to other companies or individuals who perform functions on our behalf, such as credit card processors and mailing houses; where required or authorised by law; and to anyone else you authorise us to disclose it. On occasion, we may compile data from the personal information we have collected aggregating and de-identifying it before disclosing it.
Cookies
The PKDA website uses cookies. A cookie is a small file of letters and numbers the website puts on your device if you allow it. These cookies recognise when your device has visited our website before, so we can distinguish you from other users of the website. This improves your experience and the PKDA website.
We do not use cookies to identify you, just to improve your experience on our website. If you do not wish to use the cookies, you can amend the settings on your internet browser so it will not automatically download cookies. However, if you remove or block cookies on your computer, please be aware that your browsing experience and our website’s functionality may be affected.
Website analytics
Our website uses Google Analytics to help us better understand visitor traffic, so we can improve our services. Although this data is mostly anonymous, it is possible that under certain circumstances, we may connect it to you.
Direct marketing
We may send you direct marketing communications and information about our services, opportunities, or events that we consider may be of interest to you if you have requested or consented to receive such communications. These communications may be sent in various forms, including mail, SMS, and email, in accordance with applicable marketing laws, such as the Australian Spam Act 2003 (Cth).
You consent to us sending you those direct marketing communications by any of those methods. If you indicate a preference for a method of communication, we will
endeavour to use that method whenever practical to do so.
You may opt-out of receiving marketing communications from us at any time by following the instructions to “unsubscribe” set out in the relevant communication or
contacting us using the details set out in the “Enquiries and Complaints” section below.
We will take reasonable steps to protect your information from risks such as misuse, interference and loss, and unauthorised access, modification or disclosure. We will also take steps to destroy or de-identify your personal information where we no longer require it.
Wherever possible, PKD Australia will allow you to access or seek correction of the information we hold about you. If you would like to request access to or seek correction of any information we hold about you, please contact us on the details below.
If you have any questions relating to this policy or wish to make a complaint about a breach of any privacy laws by PKD, please email manager@pkdaustralia.org